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Searching For A Cure
Mitochondrial disease has been in the ‘spotlight’ this week as Mitochondrial Disease Awareness Week continues. I was inspired by an episode of CBC’s The Current that I heard this morning (see below),...
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Kate’s Story – Reprise
After reviewing my post last night, I went into my Kate file (a large filing box in the basement) and pulled out the journal I started after her first visit with the developmental pediatrician in July...
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Kate’s Story – Managing Kate’s Care
By December 2008, we had been heavily engaged with the medical community concerning Kate for about 6 months. When you think of the larger picture – and when I reflect on the last 5 years, really this...
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Are You A Medical Professional?
You wouldn’t believe how many times I have been asked if I am a doctor. Honestly, it never fails that whenever Kate presents at the emergency department or is admitted to hospital that a resident,...
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“How To Be A Good Guest”
NOTE: We have been home for just over 2 weeks from a close to 7 month hospitalization. This blog post has been sitting in my ‘draft’ since late August. It’s interesting now to read it and reflect on...
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